Awareness day done (05.11.2018)
It’s been a busy day! But in a good way.
And no, that rhyme wasn’t planned, it just jumped in there ,-)
I’ve been creating some imaging, over the past few weeks, in advance of an awareness-raising campaign today. It’s for a rare neuro-inflammatory & autoimmune disease, called CRPS.
Complex Regional Pain Syndrome. Reflex Sympathetic Dystrophy (RSD) is its former name, but RSD is still used in some areas.
With either name, it’s a horrible disease. Not a terminal illness, but it causes pain, rated – by pain specialists – as worse than cancer pain. Or giving birth, or kidney stones.
CRPS affects several systems in the body, but researchers aren’t sure how. The joints, skin, nervous system, localized body temperature, and more.
Without knowing how the disease starts, progresses, and spreads within the body, it’s really hard for doctors & researchers to find treatments.
And today is CRPS Awareness Day. People participating include doctors, nurses, researchers, other healthcare professionals like occupational & physical therapists, patients, and their loved ones. Folks who’re familiar with this condition.
We’ve all been using social media today to share information about CRPS with each other, but also – more importantly – with people who’ve never heard of it.
Because the more people know about CRPS, the more likely it will be for others to get a faster diagnosis.
If you use Instagram or Twitter, you can find posts at #CRPSorangeDay. Here are a few of mine, using my own pics!