Thank you, CPS! (05.11.2018)
There has been a huge flurry of social media activity over on Twitter & Instagram so far today, for an awareness day, week, and month – and it’s only lunchtime! All this activity is for:
- CRPS Awareness Day #crpsOrangeDay
- Day 1 of Canada’s National Pain Awareness Week #NPAW2018
- The first day of CRPS Awareness Month #crpsAwarenessMonth
These are all related because CRPS is a chronic neuropathic pain disease, and #NPAW2018 is organized by the Canadian Pain Society (CPS) to raise awareness of pain conditions.
And today the CPS once again showed its “Patients Included” philosophy! They included my contribution to CRPS Orange Day on the website for their awareness week ,-)
‘Again’ because back in May I was pleased to be a “Patient Partner” at their annual scientific meeting, or conference. And to be a member of the conference’s “Twitter team”, sharing information presented at the conference with folks who couldn’t be there.
The CPS is a group of doctors, healthcare therapists (including occupational & physiotherapists), psychologists, researchers, and other professionals working with people in pain.
And CPS members have recognized how important it is to consider the patients’ own lived experiences in managing, researching, and treating chronic pain conditions – like CRPS.
This seems to be something that everyone working with patients should do, to take into account a person’s experience living with a chronic illness. But it’s uncommon, and deeply appreciated, to find a professional organization in healthcare that does just that.
You can find the full list of CPS #NPAW2018 activities on their web page: NPAW 2018.
And here’s what they included for my CRPS Orange Day activities:
“For this targeted chronic pain awareness campaign, Sandra Woods has created a set of original images to show Complex Regional Pain Syndrome (CRPS), formerly Reflex Sympathetic Dystrophy (RSD), in a different light. Each image will have accompanying text, within the social media post. The images use her own (one-handed due to CRPS) smartphone photos. You can find them on Twitter hashtag #crpsOrangeDay, which represents flame orange, the colour for CRPS, due to its burning neuropathic pain.”
They also added a link to an in-hospital art exposition, which includes one of my awareness-raising pics:
“For a completely different way to raise awareness of chronic pain, folks in Montréal can visit the [McGill University Health Centre] MUHC “Journeys through Health” public art exposition at the Montreal General Hospital. Works presented are by medical students, healthcare professionals, MUHC employees, patients, caregivers, and a few professional artists. This art show runs from October 2018 through the end of May 2019, in the hospital’s main hallway: Cedar Avenue, 6th floor Main entrance.”