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Posted by on May 26, 2018 in CRPS / RSD | 0 comments

CRPS session, at CPS (26.05.2018)

CRPS session, at CPS (26.05.2018)

This past week I was a patient attendee – a “patient partner” – at the Canadian Pain Society conference, a scientific meeting of people interested in pain; diagnosing it, living with it, preventing it, researching it, and treating it. In some ways it was strange to be at this conference, because I was there as a CRPS patient and not as a professional working in healthcare. You can read Patients as partners for more on that, and about what the conference organizers did to make their patient partners feel welcome.

It’s important to keep in mind that it was a scientific – or healthcare – conference; think of it as a medical conference with doctors, nurses, occupational therapists, physiotherapists, psychologists, and others who work with people in pain. So the main goal of the conference is for doctors and others to share medical & scientific information. This helps spread knowledge between hospitals and medical schools across Canada, so that a patient in one area can benefit from work being done in another area of the country.

Patient attendees at these types of events are expected to be well-informed about their diseases, to be able to follow at least the general concepts of most of the presentations. This lets the patients ask questions, and to raise issues that a doctor or nurse or physiotherapist might not even have thought of. Otherwise patients won’t be able to make meaningful contributions at these meetings.

On the CRPS patient side, it was a fantastic conference. There was a full session on CRPS; a session is a set of 3 presentations, for a total of 1.5 hours. And there were also 2 posters on CRPS – each one about a different research project. You can read about both of these posters at CRPS at CPS = Posters. I was able to talk with the poster presenters about their projects, and also with 2 of the session presenters. It was really nice to be able to talk with folks who’re actively researching CRPS.

In this post, I want to give you just an overview of the session on CRPS. I’ll write about each of the 3 presentations separately; I’ll try to write them over the course of the next week, while they’re still fresh in my mind! The overall title of the session was Mechanism-informed management for Complex Regional Pain Syndrome. This session was on the first day of the scientific meeting (May 25th), so I didn’t have to wait for too long to see the presentations that were likely to be the most interesting for me!

The 3 different presentations during this session were:

  1. Mechanisms and Management (of CRPS)
  2. Evidence-based rehabilitation strategies for CRPS
  3. Measuring Up: CRPS mechanisms and measures

The main goals of these 3 talks were to give information and updates on

  • An overview of what’s already known about CRPS, and which treatment(s) – if any! – have been proven to work
  • What’s new in rehabilitation for CRPS patients
  • A measurement system for clinical/medical research on CRPS,  called COMPACT

If any of these topics interest you, stay tuned! I’ll write a short post about each of them soon.

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Links:

The Canadian Pain Society (CSP)

The International Association for the Study of Pain (IASP)

References:

  1. Francois Gobeil, MD, FRCP. Mechanisms and Management, presented Session 107 of the 39th Annual Scientific Meeting of the Canadian Pain Society (CPS). 25 May 2018, Montréal, Canada.
  2. Janet Holly, MSc PT. Evidence-based rehabilitation strategies for CRPS, presented Session 107 of the 39th Annual Scientific Meeting of the Canadian Pain Society (CPS). 25 May 2018, Montréal, Canada.
  3. Tara Packham, OTReg(Ont). Measuring Up: CRPS mechanisms and measures, presented Session 107 of the 39th Annual Scientific Meeting of the Canadian Pain Society (CPS). 25 May 2018, Montréal, Canada.

 

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