Wow! We’re already halfway through November. And that means there’s only 15 days of CRPS Awareness Month left to go!
If you’ve been following the social media campaign for #CPRSawarenessMonth, you may have seen some of my creations. For the past 2 and half years or so, I’ve been using my smartphone pics – taken using only 1 hand – to raise awareness of this nasty disease.
Because the more people know about this condition, the more likely it is that other patients will be diagnosed more quickly. This is really important, because a faster diagnosis usually means a better outcome for people with CRPS. What doctors call a better prognosis.
It took a while for me to get a diagnosis; only 3 months, but it felt like years. And that 3-month delay gave the disease the chance to settle in and do damage that might otherwise have been prevented. So my CRPS is now considered permanent. But there’s a good probability that it would have gone away – or been a much milder case – if I’d been diagnosed more quickly. That thought is very hard to live with, sometimes.
So I’m raising awareness to help others, so this doesn’t happen to other people. That’s at the heart of why I blog & raise awareness about Complex Regional Pain Syndrome. And it really works! I’ve heard from several people during this past 2.5 years, who were able to get a diagnosis more quickly – because of information I’d shared here or on social media.
And that’s a fantastic feeling! So for both #CPRSawarenessMonth and #CPRSorangeDay this year, I tried to tap back into the creativity I used to love, when I could still do things like photography, sewing, etc. with my right hand.
My goal was to create a series of special images for these events – using my own smartphone pics. And to try to work in the colour orange. That’s the colour of CRPS, like flames, because the neuropathic (nerve) pain often feels like a part of your body is on fire. And that’s just one of the symptoms!
In case you don’t use social media, I’ve shared some of these images here. Hope you enjoy them ‘-)
For more information on CRPS, sometimes still called Reflex Sympathetic Dystrophy (RSD), here are some quick facts about CRPS.