Tomorrow I’ll be back at a large university-hospital centre again, at their multi-disciplinary pain management unit. I’ve been a patient there since the autumn of 2016, and we’ve tried several treatments so far – but none have worked well for me.
One of the issues, with my rare neuro-inflammatory & autoimmune disease, is that it causes many different types of pain. There’s neuropathic (nerve) pain – rated by physicians as worse than both childbirth and kidney stones. And joint pain, and…
It even causes skin pain, called allodynia. All in all, I have 7 types of pain from this condition. The pain levels vary, and change throughout each day & night.
So the goal of my pain management unit is to get all these types of pain down to tolerable levels. Because these days, I’m throwing up at work – from pain – at least once a day.
It’s really not a great way to work, or to live, feeling that you’re always on the verge of vomiting from pain. Or fainting; but so far that’s only happened when someone bumped into my hand, or inadvertently touched it.
Tomorrow I’ll be back at the pain unit for the third in a series of new treatments; full-body infusions of anaesthetic. These infusions always make me nervous, so I created the word “infusio-nerves”!
Wish me luck tomorrow , -)