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Posted by on Jun 26, 2018 in CRPS / RSD | 0 comments

Max’s 1-month update (26.06.2018)

Max’s 1-month update (26.06.2018)

It’s been a month since Max and I launched our 1-year/$1,000 fundraising challenge, to add to our & awareness-raising activities.

Max is a 3″ high stuffed bunny, with long floppy ears, holding an orange carrot in one hand… I mean one paw, not hand!

Max had already been helping me raise awareness of a rare disease, called Complex Regional Pain Syndrome (CRPS; some people still use the old name of Reflex Sympathetic Dystrophy or RSD), for a few months.

He comes with me on bike rides, and when I stop to take his picture at parks, historic sites, and other public places, someone will usually ask about him.

A 3 inch tall stuffed bunny, sitting on a bike at an ice cream shop

Photo: Sandra Woods

So I point out the orange carrot he’s holding, and tell the person (sometimes a whole group!) that orange is the colour of a rare disease called CRPS… and then they’ll ask about the disease, or why I’m raising awareness for it…

It’s a nice way to get people interested in a disease that could strike someone they know. In May, Max upped his game, and started collecting pocket change donations for a non-profit Pain Management Unit (PMU) in our city.

Why pocket change? Because in Canada we have large coins for $1 and $2, not paper currency. Most people don’t like carrying  a lot of these coins in their purses or pockets, so Max’s idea was to take some of that heavy pocket change off their hands ‘-)  But he set a “Max”-imum of $5 per donation ‘-)

And he’s already collected almost $100! Our hoped-for $1,000 total donation, next May, will be to the Alan Edwards Pain Management Unit (AEPMU), and its associated Alan Edwards Centre for Research on Pain (AECRP). Both of these centres are at the Montréal General Hospital (MGH), which is part of the McGill University Health Centres (MUHC).

A 3 inch tall stuffed bunny, sitting on the patio of a café

Photo: Sandra Woods

Because there are very few specialized PMUs in Canada, this one treats patients from across the province. So it will be a donation to a local hospital, but one that serves people from across the province in this specialized clinic.

Once we’re ready to make the donation, I’ll find a way to post ‘proof’ that the money was given to the AEPMU/AECRP; it might be a photo of the receipt, or something else, but I’ll definitely post some kind of proof the donation was made!

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