Max’s Q1 update (27.08.2018)
This little plush animal has been helping me raise awareness of a rare neuro-inflammatory disease; Complex Regional Pain Syndrome (CRPS). It’s Sometimes called Reflex Sympathetic Dystrophy (RSD), its old name.
The long-eared bunny is Max, and he’s only 3″ high. He carries around his own snack, a little orange carrot. Orange is the colour of CRPS, so his snack is the tie-in to this disease!
To find out about how he helps raise awareness of this disease, read about Max here.
Since this past May 27th, Max has also been helping me raise money – pocket change only! – to be donated to the Alan Edwards Pain Management Unit (AEPMU) and the Alan Edwards Centre for Research on Pain (AECRP).
Well, after 3 months now, he’s collected just over $250! We were hoping to have $300 by the end of “Q1”; the first financial quarter – or 3-month period – of our fundraising year.
But July is a popular month for vacations here, so I guess we should have expected fewer contributions. Oh well, there are still 9 months to go before our planned May 27, 2019 donation day! ,-)
That date is important to me, because it’s the date on which I was diagnosed with CRPS in 2016. At a local community hospital, though, not at the AEPMU.
After about 3 months of being told that nothing was wrong with me, I was finally diagnosed at that community hospital. I’d even been told: “Stop exaggerating, madam, you’re not a child”. The exact words were spoken to me in French, even though I speak English: “Arrêtez d’exagérer madame, vous n’êtes pas un enfant”.
The AEPMU, on the other hand, has been just fantastic ever since I was referred to them. As was the original doctor at the smaller hospital, in the emergency department or room (ED or ER).
As for our fundraising goal, it’s to raise $1,000 by May 27, 2019. By collecting only pocket change, and only up to $5 at a time – per person.
Once the donation’s been made, I’ll find a way to post ‘proof’ that the money went to the AEPMU; maybe a photo of the receipt…
In the meantime, thanks to everyone who’s contributed some change! Including these local police officers ,-)