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Posted by on Aug 27, 2018 in CRPS / RSD | 0 comments

Max’s Q1 update (27.08.2018)

Max’s Q1 update (27.08.2018)

This little plush animal has been helping me raise awareness of a rare neuro-inflammatory disease; Complex Regional Pain Syndrome (CRPS). It’s Sometimes called Reflex Sympathetic Dystrophy (RSD), its old name.

The long-eared bunny is Max, and he’s only 3″ high. He carries around his own snack, a little orange carrot. Orange is the colour of CRPS, so his snack is the tie-in to this disease!

To find out about how he helps raise awareness of this disease, read about Max here.

A 3 inch tall stuffed bunny, sitting in a bike helmet

Photo: Sandra Woods

Since this past May 27th, Max has also been helping me raise money – pocket change only! – to be donated to the Alan Edwards Pain Management Unit (AEPMU) and the Alan Edwards Centre for Research on Pain (AECRP).

 

Well, after 3 months now, he’s collected just over $250! We were hoping to have $300 by the end of “Q1”; the first financial quarter – or 3-month period – of our fundraising year.

But July is a popular month for vacations here, so I guess we should have expected fewer contributions. Oh well, there are still 9 months to go before our planned May 27, 2019 donation day! ,-)

That date is important to me, because it’s the date on which I was diagnosed with CRPS in 2016. At a local community hospital, though, not at the AEPMU.

After about 3 months of being told that nothing was wrong with me, I was finally diagnosed at that community hospital. I’d even been told: “Stop exaggerating, madam, you’re not a child”. The exact words were spoken to me in French, even though I speak English: “Arrêtez d’exagérer madame, vous n’êtes pas un enfant”.

The AEPMU, on the other hand, has been just fantastic ever since I was referred to them. As was the original doctor at the smaller hospital, in the emergency department or room (ED or ER).

photo of a broken arm beside a pain scale

Photo: Sandra Woods

As for our fundraising goal, it’s to raise $1,000 by May 27, 2019. By collecting only pocket change, and only up to $5 at a time – per person.

Once the donation’s been made, I’ll find a way to post ‘proof’ that the money went to the AEPMU; maybe a photo of the receipt…

In the meantime, thanks to everyone who’s contributed some change! Including these local police officers ,-)

A 3 inch tall stuffed bunny, with 2 police officers

Photo: Sandra Woods (with permission)

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