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Posted by on May 30, 2016 in CRPS / RSD | 0 comments

“Google this”, a diagnosis (30.05.16)

“Google this”, a diagnosis (30.05.16)

The cast finally came off my injured arm in mid-April 2016. For the next 6 weeks I struggled to make the orthopedic surgeon understand that something wasn’t right, and that the physiotherapy (PT) team treating me post-fracture agreed that something was still wrong with my hand and arm. These problems included the three different types of pain – much worse than the original fracture – that I’d already told him about when the cast was still on my arm.

The new symptoms included stiffness or rigidity in all of the finger joints of my right hand, and what looked like red stripes of inflammation across all these joints. This had all started in my fingertips when I still had the cast on, and was progressively moving further up my arm every week.

Photo: Sandra Woods

I work in bioethics, protecting patients’ rights, but despite this background I just couldn’t find a way to get through to this physician. At one point I went as far as to call the hospital during his vacation, and asked to see another physician in the orthopaedic department; my request was refused.

During this same period I’d been laid-off from a permanent position in a wave of job cuts, and had started a new contract job the week after the cast was removed from my arm. I was struggling to keep working through the pain, and at one point had to stop eating every day – until I got home from work – because I’d vomit every time I had an unexpected “flare” of pain… and the offices were carpeted.

The good news was that fasting all day really wasn’t much of a hardship, as the pain was so bad that I didn’t have much appetite! When she realized that I was fasting all day at work, to avoid vomiting from pain, the Director of my PT clinic wrote a letter – and put it in a sealed envelope – for me to give to the orthopedic surgeon; she had me make yet another appointment with him at the hospital.

There’s no charge for these follow-up hospital appointments in Québec’s publicly-funded healthcare system, but I’d been made to feel that I was wasting the specialist’s time and taking resources away from other patients who really needed his expertise – so I really didn’t want to see him again.

I gave the envelope from the PT clinic to the orthopedic surgeon, and after he read it he brought in another physician from the orthopaedic department into the examination room. This physician asked me 3 questions, said 3 letters, and left the room.

The previously dismissive orthopaedic surgeon then spent 15 minutes on the phone setting up a next-day, Friday, emergency appointment for me with another specialist at the same hospital. He didn’t tell me what type of specialist I’d be seeing at 1115 the next morning, or what the diagnosis was.

Instead he wrote 3 words onto a slip of paper (I later found out that one of the words was misspelled), and handed it to me with his advice to “Google this”. All he told me is that the specialist I’d be seeing the next day would probably do an injection into my hand, which would relieve the pain.

I finally had a diagnosis, but didn’t yet realize what its impact would be on my life.

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