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Posted by on Jan 28, 2019 in CRPS / RSD | 0 comments

One month to go, Canada (28.01.2019)

One month to go, Canada (28.01.2019)

In just 30 days it will be International Rare Disease Day again.  This

“takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.”(1)

This annual awareness campaign began in Europe, in 2008. Organizers worked with rare disease organizations in many areas, and countries outside of Europe soon joined in:

“Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada”(2).

It has now “become a world phenomenon, with the USA joining in 2009 and participation in over 90 countries all over the world in both 2017 and 2018.”(3)

To find about International Rare Disease Day events in Canada, on or around February 28, 2019, visit: https://www.rarediseaseday.org/country/ca/canada

If you’ll be in Montréal on the 28th, one fantastic event will be at McGill University; organized by medical students, the Rare Disease Interest Group (RareDIG). Tickets are already available, at:

https://montreal.carpe-diem.events/calendar/9482685-rare-disease-day-2019-raredig-at-moyse-hall/

If you’ll be there, feel free to come say hi!

~~~~~~~~~

(1) https://www.rarediseaseday.org/article/what-is-rare-disease-day

(2) https://www.rarediseaseday.org/country/ca/canada

(3) https://www.rarediseaseday.org/article/what-is-rare-disease-day

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