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Posted by on Nov 25, 2018 in Bioethics, CRPS / RSD | 0 comments

Worlds collide (25.11.2018)

Worlds collide (25.11.2018)

Sometimes my worlds collide. The newest of my worlds, which often seems to take over my life, has been that of becoming a rare disease & chronic pain patient.

The word “becoming” is key, as it’s not a linear progression. I didn’t go from ‘person’ to ‘rare disease patient’ overnight. There was an initial 3-month mis-/missed diagnosis. Then 2.5 years of tried & often failed therapies and treatments. Still at this stage, really.

Another of my worlds – my background & expertise, my passion – has long been biomedical ethics. Or bioethics, depending on the area(s) of the world in which you live and work.

So when I heard about a new scientific publication, about to be launched, I was thrilled to see these two worlds collide – in a positive manner. What is this publication?

It’s a book from the Academic Press, available through Elsevier. The title? Pain Neuroethics and Bioethics.(1) The book is summarized, on Elsevier’s website, in this way:

“The treatment of pain and scientific pursuits to understand the mechanisms underlying pain raise many ethical, legal, and social issues.

For the first time, this edited volume brings together content experts in the fields of pain, pediatrics, neuroscience, brain imaging, bioethics, health humanities, and the law to provide insight into the timely topic of pain neuroethics.

This landmark volume of the state of the art exploration of pain neuroethics will be a must read for those interested in the ethical issues in pain research, treatment, and management.”(1)

And a definite ‘must read’ for me; a bioethics professional who is also living the patient experience of the “ethical issues in pain research, treatment, and management”.(1)

If you’re as intrigued as I am by this publication, you may want to join me (on-line!) at a book launch seminar on November 28th. It’s being hosted by the Joint Centre for Bioethics (JCB) at the University of Toronto, under the aegis of their weekly bioethics seminar program. (2)

There’s a fantastic lineup up five presenters, details of which are shown on this poster for the event:(2)

Poster for book launch seminar at the Joint Centre for Bioethics on 28.11.2018, for "Pain Neuroethics and Bioethics"

Poster: University of Toronto, Joint Centre for Bioethics


I’ll definitely be logging in, to join this book launch! If you’d also like to attend on-line, you’ll find a link to the webcast on the JCB seminar series website, below.


(1) Daniel Buchman, Karen Davis; Eds, Serial Volume. “Pain Neuroethics and Bioethics”, Volume 1; 1st Edition. Elsevier. 01 Oct 2018. Web information, accessed 25 Nov 2018:

(2) University of Toronto, Joint Centre for Bioethics. “Community Tools: Bioethics Seminar Series”. Accessed 25 Nov 2018. Web:


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