We’ve assumed for some time, in health care and bioethics circles, that patients who are active on-line would want eAccess to their own health information. A study was published last week, which explores the related questions of whether patients really do want this eAccess (they do!) Read More …
For just over a year now, I’ve been searching for definitions or descriptions of a rare disease; CRPS, sometimes also called RSD. Complex Regional Pain Syndrome, which often still goes by its former name in medical circles; Reflex Sympathetic Dystrophy. I’ve been looking for good Read More …
At the end of this month, the specialist physician who’d been treating me during his one-year Fellowship – at one of Montreal’s many university teaching hospitals – moved back home to another country. Dr. Díez Tafur been away from his wife and young son for almost a Read More …
Earlier this month, I mentioned that I was a Team Captain for a 4-week workplace fitness challenge. This is despite dealing with a chronic, (mostly) invisible, and rare disease. I’d been thinking of posting something about this rare disease on the challenge’s social media platform, Read More …
A few weeks ago, and about a year after my rare disease diagnosis, I had an appointment with one of my long-time physicians; someone who isn’t part of my medical team for Complex Regional Pain Syndrome (CRPS, often called by its former name; RSD, for Read More …
This photo shows some of the remaining portions of the castle-like Fort Senneville, which was completed in 1703 on the site of an older fort from 1692. Because the ruins of the Fort are on private property, set far back from the road on a point jutting Read More …
