Founded in 2008, international Rare Disease Day(1) is celebrating its 10th anniversary this year, on February 28th. What is Rare Disease Day? I’m so glad you asked! It’s a day on which healthcare professionals and volunteers, medical students, trainees, patients and caregivers, researchers, and the general public are Read More …
It will be Rare Disease Day (1) in just over a week, on February 28th. This is important to me, because in early 2016 I was struck with a rare disease. And then misdiagnosed, over a period of almost three months. That doesn’t seem like Read More …
Last summer the rare neuro-inflammatory disease affecting my hand and arm seemed to be getting slightly better, so I became very hopeful that it was starting to go away. I’d been told that the disease can disappear in some people (or spread, or jump to the Read More …
