Last week I was a Patient Partner at the three-day 2018 conference (annual scientific meeting) of the Canadian Pain Society (CPS). On Twitter and Instagram, it was #CanadianPain18. I was also part of the conference’s official Twitter team, live-tweeting the event from a patient perspective. My rare disease is Complex Regional Read More …
I’d been looking forward to today, for almost a month. May 29th. The day I was going to have a new treatment at the hospital, for the rare neuro-inflammatory disease with which I’ve been struggling for over 2 years now. Complex Regional Pain Syndrome, often still called Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
