There has been a huge flurry of social media activity over on Twitter and Instagram so far today, for an awareness day, week, and month – and it’s only lunchtime! All this activity is for: CRPS Awareness Day #crpsOrangeDay (1) The first day of Canada’s Read More …
Why do I spend so much of my free time raising awareness of CRPS? Of Complex Regional Pain Syndrome, formerly called Reflex Sympathetic Dystrophy (RSD)? Whether by blogging, creating poster-style images, presenting/speaking, or other means? Why is it important for me to increase awareness of this Read More …
Complex Regional Pain Syndrome (CRPS) is a mostly invisible neuro-inflammatory disease, which causes horrific pain. Many different types of pain, including neuropathic (nerve) pain and joint pain. It’s also responsible for reductions in joint mobility and range of motion, although the reasons for this remain unclear. In its early phase, “CRPS Read More …
My local library often puts their newly-acquired books on display, in a special near the main entrance, just as bookstores do! The first thing I do whenever I visit our library is always to skim through these new books. I have to admit that I’m Read More …
For so many years, I took so much for granted. Most of us do. For me, it was being able to cross-country ski, hand-write a thank you card, lace up my skates, make and decorate fancy layer-cakes and cupcakes, ride a road (racing-style) bike, sew Read More …
A couple of weeks ago, I wrote about a poster I’d seen at the hospital where I’m a rare disease patient. It was for a community art exhibition, to be held right there in the hospital. It’s the second year of “Journeys Through Health: An Read More …
