This wraps up the sixth annual awareness day for Complex Regional Pain Syndrome (CRPS), the disease with which I’ve been struggling since 2016. It causes a multitude of symptoms, including a variety of different and distinct types of pain. From the pain of ankylosis, similar Read More …
Today’s the 6th annual Color the World Orange Day, to raise awareness for a rare and usually invisible disease. This disease is called Complex Regional Pain Syndrome (CRPS). This year, due to the efforts of a number of volunteers around the globe, More than 120 Read More …
Some days it feels as though there’s an invisible timer running between my hand and my brain. Then, whenever my rare disease decides that I’ve done too much – or it gets too cold or hot, or for no reason – the timer goes off Read More …
After my experience as a patient-participant at Play the Pain earlier this month, I was curious to try something new at a two-hour art workshop today. It was being given – for free! – at my local library. This library re-opened just this past spring, Read More …
A graveyard, in the pre-dawn dark of a foggy morning. Eerie tombstones loom among fallen autumn leaves. The hands – and heads! – of monsters rise up from the cold, hard earth. Skeletons swing in the gentle breeze, suspended from the lifeless branches of a Read More …
I was away last week, on vacation in the Adirondack Mountains of northern New York State. The ‘dacks, as they’re known locally. My husband and I were there to do some alpine hiking. What that means, more or less, is going up to a mountain Read More …
