I thought this would be a good time, as the first month of the year draws to a close, to write about some of the positive aspects of my patient journey. This isn’t to downplay any of the negative ‘stops’ on my rare disease ‘train’, Read More …
![Do you live with #ChronicPain? Want to comment on a new game + research app, to be designed for pain patients like us? To join a short Focus Group, contact media.health@concordia.ca Info + video clip: media-health.ca/play-the-pain [Image: ©Sandra Woods]](https://bioethicanada.ca/wp-content/uploads/2020/01/20200123_170221-480x320.png)
Earlier this month I told you that I was involved, as a volunteer Patient Partner, in two different projects relating to chronic pain. One is a knowledge translation (KT) project, with the Pain Science Division (PSD) of the Canadian Physiotherapy Association (CPA). This project pulls Read More …
A few days ago I wrote that I’d signed up for a series of activities this winter, to force myself to get out of the house. Sometimes, when living with severe chronic pain, it seems easier to just stay in during our cold, icy, and Read More …
To make sure that I get out of the house more often this winter, to avoid the bad situation in which I found myself at this time last year, I’ve just signed up for a number of activities. I live in an area of several Read More …
Last summer I received an out of the blue email, from the Executive Director of PARC. That’s the national patient organization for my rare disease, Complex Regional Pain Syndrome (CRPS). CRPS used to be called Reflex Sympathetic Dystrophy (RSD), so the new label for the Read More …
Do you make New Year’s resolutions? If not, do you make a pact with yourself to do something in the New Year that’s different from what you’ve done in the past? To learn something new, to develop a new habit or break an old one? Read More …
