I’m very happy to announce that my blog – on bioethics, patient privacy, and my patient journey – is finally back in bloom! Back online, in gardening terms. This blog has been offline for several months, for two reasons.
First off, there was an issue with the migration of the blog to a new – more secure – host. Multiple migration attempts failed, so I’ve had to manually load each blog post from a ‘recovery mode’ version. A number of friends and loved ones helped with this – thank you all!!
The second reason is that I’ve been experiencing some disease-related cognitive issues since the end of last year. You can read more about this in two posts I wrote, in May and in June. This minor cognitive impairment (MCI) can cause difficulties with concentration, focus, and short-term memory.
Because I can’t concentrate for extended periods of time, I’ve had to rebuild the blog in increments of fifteen or thirty minutes; this has been a very slow process. It’s also not yet complete. There are still a number of posts to be uploaded, from the past two years, but I didn’t want to keep the blog offline any longer – just waiting for those posts to be added.
For my regular readers, I can’t thank you enough for patience, and for coming back! For new readers, hello and welcome! You may notice that there are three sections on this blog; bioethics, privacy, and CRPS. My career was in biomedical ethics (bioethics) and the protection of patients’ health information, so I originally began blogging on those topics – over ten years ago.
After I was struck with Complex Regional Pain Syndrome (CRPS) in 2016, I quickly began communicating with others who have this rare condition. Other patients would ask me to write down what we’d talked about, so I added a CRPS section to the blog.
Although I used to love reading and responding to your comments, whether on bioethics, CRPS, or privacy protection, I’ve had to disable this function on the blog. There are always spam messages and attempted hack-attacks on these types of blogs, and these are too much for me to deal with – on top of the disease that has in many ways taken over my life.
Please feel free to reach out via social media; my Instagram and Twitter feeds are now up, right here on the blog. Stay happy, and as well as you can!
The only thing that is constant is change”
– Heraclitus