There’s going to be a two-day event next month, here in Montreal, which looks very intriguing. Its title is Play the Pain, and it’s billed as a “participatory free for all event to discuss ideas.”(1) The organizers seem to have opted for a drop-in type Read More …
Yesterday evening I participated in an online ‘chat’, using the Twitter micro-blogging platform. The topic was “Healthcare and Social Media”(1), which fits in nicely with how I’m trying to raise awareness of CRPS – by using social media. What is social media? At this point Read More …
For so many years, I took so much for granted. Most of us do. For me, it was being able to cross-country ski, hand-write a thank you card, lace up my skates, make and decorate fancy layer-cakes and cupcakes, ride a road (racing-style) bike, sew Read More …
A couple of weeks ago, I wrote about a poster I’d seen at the hospital where I’m a rare disease patient. It was for a community art exhibition, to be held right there in the hospital. It’s the second year of “Journeys Through Health: An Read More …
This post isn’t about therapy, it’s about art-as-outreach at a local university’s multi-hospital health centre. Last Thursday was another ‘patient day’ for me; after getting some work done at my office, from 0700 to 0930, I headed over to the hospital. My destination was the multi-disciplinary Read More …
Founded in 2008, international Rare Disease Day(1) is celebrating its 10th anniversary this year, on February 28th. What is Rare Disease Day? I’m so glad you asked! It’s a day on which healthcare professionals and volunteers, medical students, trainees, patients and caregivers, researchers, and the general public are Read More …
