As someone who lives with a rare disease, and has a background in healthcare and medical research, I try to follow any research news that might affect my condition. Because Complex Regional Pain Syndrome (CRPS) is rare, there’s not usually much research published specifically about Read More …
A few weeks ago I posted about my ongoing attempt to learn to draw and to paint, with watercolours. This isn’t only about creating ‘art’, painting is also a new way to help me deal with some of the symptoms caused by my rare disease. Read More …
Did you know that today is World Chocolate Day? I didn’t, until yesterday! July 7 “marks the introduction of the food to Europe in 1550 – until this point, chocolate was only known to indigenous communities in Mexico and parts of central and south America.” Read More …
If you’ve been following along on this roller-coast rare disease journey of mine, you might remember that I decided to learn to paint – with watercolours – back in 2019. I’d signed up for a bunch of creative arts courses, at local community centres, galleries, Read More …
Many of my recent posts have been about a new journey, one that I’ve chosen for myself rather than having it imposed upon me like my patient journey. Learning paint, and to draw, as part of my delayed-by-the-pandemic plan to integrate creative art more fully Read More …
During a Keynote speech at the virtual Annual Scientific Meeting (ASM) of the Canadian Pain Society (CPS), yesterday (1), Dr. Sean Mackey made a comment that resonated with me – from both my bioethics and chronic pain patient perspectives. It’s a comment that I’ve often Read More …
