A few days ago I wrote that I’d signed up for a series of activities this winter, to force myself to get out of the house. Sometimes, when living with severe chronic pain, it seems easier to just stay in during our cold, icy, and Read More …
To make sure that I get out of the house more often this winter, to avoid the bad situation in which I found myself at this time last year, I’ve just signed up for a number of activities. I live in an area of several Read More …
Last summer I received an out of the blue email, from the Executive Director of PARC. That’s the national patient organization for my rare disease, Complex Regional Pain Syndrome (CRPS). CRPS used to be called Reflex Sympathetic Dystrophy (RSD), so the new label for the Read More …
Do you make New Year’s resolutions? If not, do you make a pact with yourself to do something in the New Year that’s different from what you’ve done in the past? To learn something new, to develop a new habit or break an old one? Read More …
The past few weeks have been a good reminder that I can still contribute to projects, as a patient partner, in meaningful ways. This involves quite a bit of adaptation from the ways in which I used to do things, because I’m now living with Read More …
Happy 2020! I wish you happiness, joy, laughter, love, and health – as good as it can be – for the 2020s and beyond ‘-) As is my tradition on the first day of each year, I’ve been looking back at the past twelve months; Read More …
