I’m in shock. I’ve just been told that I’m no longer an outpatient at the community hospital at which I’ve been treated since March. First for a Colles’ fracture (a distal radius fracture, or broken arm near the wrist), and then – once I was finally Read More …
A research study was just published, combining my newfound – and extremely personal – interest in chronic pain conditions with my longstanding passion for biomedical ethics. Often called bioethics, in North America. For those reading this as patients (thank you!), the commonly accepted principles of biomedical Read More …
I’ve always considered myself to be an outdoor sports enthusiast, long before I knew there was even a term for this. My grandparents had a built-by-hand summer cottage in the foothills of the Laurentian mountains – “les Laurentides” in French – just a few houses Read More …
Back in June I ordered a Transcutaneous Electrical Nerve Stimulation (TENS) therapeutic device, to see whether it would help reduce – even temporarily – the severe pain of CRPS. Complex Regional Pain Syndrome is still often referred by its old name, Reflex Sympathetic Dystrophy. If you see Read More …
Those of us with rare diseases use a couple of animals terms differently than most other people do. First off, someone with a rare disease is a ‘zebra’, a kind of play on words on an expression used in medicine; “When you hear hoofbeats, think Read More …
Based on the recommendation of my physiotherapist, and a specialist surgeon who stopped by to see me – well, really to see my rare disease! – in the day-surgery operating room (OR) last week, I’m trying a new approach for my fingers, hand, and wrist. As Read More …
