Today I did something different, something completely new for me, at a local hospital. If it was “different”, then it obviously wasn’t another medical appointment or test for my rare disease! Nor did I attend a research meeting, as either a Patient Partner or a Read More …
While prescription painkillers once drove the nation’s overdose epidemic, they were supplanted first by heroin and then by fentanyl, a dangerously powerful opioid, in recent years.” (1) Unfortunately, though, when people hear about the “opioid epidemic” (2) – in the news, in politics, in public Read More …
If you think of contemporary artists, does the name Robert Bateman come to mind? He is “one of Canada’s foremost artists, … also a naturalist recognized by the Audubon Society as one of the 20th century’s “heroes of conservation”.” (1) He has long been my Read More …
As someone who lives with a rare disease, and has a background in healthcare and medical research, I try to follow any research news that might affect my condition. Because Complex Regional Pain Syndrome (CRPS) is rare, there’s not usually much research published specifically about Read More …
A few weeks ago I posted about my ongoing attempt to learn to draw and to paint, with watercolours. This isn’t only about creating ‘art’, painting is also a new way to help me deal with some of the symptoms caused by my rare disease. Read More …
Did you know that today is World Chocolate Day? I didn’t, until yesterday! July 7 “marks the introduction of the food to Europe in 1550 – until this point, chocolate was only known to indigenous communities in Mexico and parts of central and south America.” Read More …
