If you’ve been following along with my patient journey, you might recall that I’ve had a number of nerve blocks since my diagnosis 3 years ago: Stellate ganglion blocks Axillary brachial plexus blocks Some chronic pain specialists and researchers feel that these nerve blocks are Read More …
Back in October, I experienced something of a role reversal. After years of working in bioethics and managing a Research Ethics Board (REB), I was asked to consider participating in a clinical trial – as a patient. As a research participant. If you’re in the US, Read More …
Earlier today I had a follow-up appointment with my treating physician, at the university-hospital pain management unit (PMU) at which I receive treatment for CRPS. Complex Regional Pain Syndrome is an autoimmune and neuro-inflammatory disease, which carries a long and diverse list of symptoms. Any Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
It will be Rare Disease Day (1) in just over a week, on February 28th. This is important to me, because in early 2016 I was struck with a rare disease. And then misdiagnosed, over a period of almost three months. That doesn’t seem like Read More …
You might recall that I submitted a hospital Service Quality and Complaints Commission Dissatisfaction Form back in August. That means, in everyday language, that I filed a complaint. For the backstory, to read about the reasons for which I felt compelled to submit a complaint for how Read More …
