Last week I told you why I was so happy to find my brand-new ‘zebra hoofs’ (i.e. boots) at a shoe store’s holiday sale – and the story of how the zebra became a symbol for rare diseases. Wearing zebra print items is one of Read More …
Have you ever read something and found yourself wanting to stand up and scream: “Yes, yes, yes!”? That’s how I felt, earlier today, after reading this line in a news report: “Attending events such as family reunions, holiday parties, weddings or concerts comes at the Read More …
You’ll often see a zebra, or a zebra-striped design, featured when rare diseases are mentioned. That’s because of an old axiom, or saying, in medicine: When you hear hoofbeats, look for horses – not zebras.” A medical axiom This saying is meant to teach medical Read More …
There has been a huge flurry of social media activity over on Twitter and Instagram so far today, for an awareness day, week, and month – and it’s only lunchtime! All this activity is for: CRPS Awareness Day #crpsOrangeDay (1) The first day of Canada’s Read More …
Why do I spend so much of my free time raising awareness of CRPS? Of Complex Regional Pain Syndrome, formerly called Reflex Sympathetic Dystrophy (RSD)? Whether by blogging, creating poster-style images, presenting/speaking, or other means? Why is it important for me to increase awareness of this Read More …
Complex Regional Pain Syndrome (CRPS) is a mostly invisible neuro-inflammatory disease, which causes horrific pain. Many different types of pain, including neuropathic (nerve) pain and joint pain. It’s also responsible for reductions in joint mobility and range of motion, although the reasons for this remain unclear. In its early phase, “CRPS Read More …
