I took a “Duck, duck, goose” approach to the title of today’s post; it seemed like a good idea to add some humour, something a bit lighthearted. That’s because I’ve been getting progressively more anxious, more nervous, about an appointment later this month. It’s at the Pain Management Read More …
My right hand is more or less frozen into a claw-like position, due to a rare disease. This condition is Complex Regional Pain Syndrome (CRPS), although it still sometimes goes by it old name; Reflex Sympathetic Dystrophy (RSD). CRPS is primarily a neuro-inflammatory disease, but Read More …
One of my friends is terrified of snakes, so the title for this post is a warning – because it includes a photo of… a snake. It’s a harmless little garter snake, but still scary for some folks. Are you wondering why I’m posting a photo of Read More …
We might not phrase it this way, but we already know that our sense of touch provides critical information about our physical environment by transforming mechanical energy into electrical signals.”(1) When someone touches your hand, a set of signals is sent to your brain via Read More …
It’s been 6 months since I broke my arm (a snapped radius, or Colles’ fracture), triggering a rare disease which limits the use of my right hand and arm; from the fingertips to above the wrist. It also causes excruciating pain. And, of course, I’m Read More …
When I started searching for information about rare diseases, and connecting with others facing the same types of issues that I was, many people seemed to be referring to themselves ‘zebras’. This struck me as being a perfect word for us; a bunch – or Read More …
