It’s that time of year again, now that Halloween is over. Today is CRPS Awareness Day, also called CRPS Orange Day or Orange Day for CRPS, because the colour of this rare disease is… orange. Why orange? Because one of the most common symptoms of Read More …
Happy almost Halloween, everyone! I’ve been busy over the past few weeks, participating in meetings about pain research and health policy, providing a patient perspective on the development of a new pain research project, and preparing my own little awareness campaigns for some special events Read More …
Today I did something different, something completely new for me, at a local hospital. If it was “different”, then it obviously wasn’t another medical appointment or test for my rare disease! Nor did I attend a research meeting, as either a Patient Partner or a Read More …
If you think of contemporary artists, does the name Robert Bateman come to mind? He is “one of Canada’s foremost artists, … also a naturalist recognized by the Audubon Society as one of the 20th century’s “heroes of conservation”.” (1) He has long been my Read More …
If you’ve been following along on this roller-coast rare disease journey of mine, you might remember that I decided to learn to paint – with watercolours – back in 2019. I’d signed up for a bunch of creative arts courses, at local community centres, galleries, Read More …
Many of my recent posts have been about a new journey, one that I’ve chosen for myself rather than having it imposed upon me like my patient journey. Learning paint, and to draw, as part of my delayed-by-the-pandemic plan to integrate creative art more fully Read More …
