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Home >Posts tagged  Rare Disease (Page 45)

Tag: Rare Disease

words describing CRPS or RSD, including flare, hospital, pain, neuropathic, painful, physician

Code breaking 03.06.16

Posted on03.06.201624.10.2019

It’s impossible to describe the relief – after months of being told that nothing was wrong (and to stop exaggerating!) – of finally having a name for what’s happening to my hand and arm. For the past few months, it’s as though I’ve lacked the Read More …

CategoriesCRPSTagsComplex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a woman's wrist with severe swelling

Google this 30.05.16

Posted on30.05.201624.10.2019

The cast finally came off my injured arm in mid-April 2016. For the next 6 weeks I struggled to make the orthopaedic surgeon understand that something wasn’t right. The physiotherapy (PT) team treating me post-fracture agreed that something was still wrong with my hand and Read More …

CategoriesBioethics, CRPSTagsChronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a woman's broken arm, with a bone sticking out near the wrist

Undiagnosed 29.05.16

Posted on29.05.201624.10.2019

It took almost 3 months to get a diagnosis – of what turned out to be a disease – even though my family physician, my physiotherapy team, and I had all known that something was seriously wrong. I’d broken my right arm (fractured my radius; Read More …

CategoriesCRPSTagsChronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a woman's broken arm, with a bone sticking out near the wrist

Before symptoms 28.05.16

Posted on28.05.201624.10.2019

I’d broken my right arm (fractured my radius; a Colles’ fracture) in early March 2016, and had gone to a local community hospital. The emergency physician there had done an excellent job of setting it; I know, because she proudly showed me the before and Read More …

CategoriesBioethics, CRPSTagsBioethics, Chronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

an x-ray of a fractured radius or broken arm

How it started 27.05.16

Posted on27.05.201624.10.2019

In late winter of 2016, I slipped on a patch of ice and broke my arm. I fell hard onto my right hand and hip, so consider myself lucky not to have broken my hip. That said, I snapped the radius clear through. I’m right-handed, Read More …

CategoriesBioethics, CRPSTagsBioethics, Chronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

cover page of report: Debunking the Myths: A Broader Perspective of the Canada Health Act

Rare care 14.11.13

Posted on14.11.201324.10.2019

The Canada Health Act (the Act) has always seemed – to me – to be one of the most misunderstood pieces of legislation in this country. Contrary to popular belief, for example, it doesn’t guarantee that a Canadian living in one province or territory can Read More …

CategoriesBioethicsTagsBioethics, Rare Disease

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