Earlier this month, I mentioned that I was a Team Captain for a 4-week workplace fitness challenge. This is despite dealing with a chronic, (mostly) invisible, and rare disease. I’d been thinking of posting something about this rare disease on the challenge’s social media platform, Read More …
A few weeks ago, and about a year after my rare disease diagnosis, I had an appointment with one of my long-time physicians; someone who isn’t part of my medical team for Complex Regional Pain Syndrome (CRPS, often called by its former name; RSD, for Read More …
This photo shows some of the remaining portions of the castle-like Fort Senneville, which was completed in 1703 on the site of an older fort from 1692. Because the ruins of the Fort are on private property, set far back from the road on a point jutting Read More …
This is so cool, in a sad kind of way… I’m excited because of a news item, in Canadian media, about someone who has the same disease that I do. It’s a rare medical condition, which isn’t well-known even among physicians. So it’s a surprise Read More …
There was a potentially controversial opinion piece published in a medical journal this week: How Chronic Pain Treatment Falls Short of Patient-Centered Care.(1) The title is somewhat misleading as it’s about neither treatment options nor specific patient outcomes. It’s an article regarding attitudes, or perspectives, on chronic Read More …
My diagnosis, a rare neuro-inflammatory disease, was almost a year ago. It was triggered by a simple broken arm, a Colles’ fracture, in early March 2016. Despite having obvious clinical signs, in addition to my self-reported symptoms – that something was wrong back then – Read More …
