Yesterday was something of a milestone in my patient journey. Three years since being diagnosed with CRPS, Complex Regional Pain Syndrome. Or RSD, Reflex Sympathetic Dystrophy, as it used to be known. Whatever the name, it’s a horrible disease. Not well understood even within the Read More …
A few months ago a part of my world collapsed, although I didn’t realize it at the time. I was diagnosed with mild cognitive impairment, or MCI, as a result of a rare autoimmune and neuro-inflammatory disease. I’ve had the disease since mid-2016, so had Read More …
Regular readers will know that I’m generally optimistic, happy even, despite the rare autoimmune and neuro-inflammatory disease with which I’ve been struggling for the past few years. My focus tends to be on what I can do, more than on what I can’t; not just Read More …
It feels as though I’ve been hiding under a rock for the past little while, even on my regular social media haunts (Twitter and Instagram). That’s because I’ve been dreading a specific medical appointment. It was with the specialist physician who’s treating my neuro-inflammatory and Read More …
Happy April Fool’s Day! Instead of pulling a practical joke on you today, I have a fun challenge lined up; some CRPS-related word puzzles ‘-) Although it does seem kind of funny to use the word fun in the same sentence as CRPS, or Complex Read More …
This afternoon I had the chance to meet with a group of bright young medical students, from McGill University. To talk with them, and – more importantly! – to answer their questions. About my patient journey. From biomedical ethics (bioethics) professional, to being a patient living Read More …
