If you’ve been following along with my patient journey, you might recall that I’ve had a number of nerve blocks since my diagnosis 3 years ago: Stellate ganglion blocks Axillary brachial plexus blocks Some chronic pain specialists and researchers feel that these nerve blocks are Read More …
Yesterday was something of a milestone in my patient journey. Three years since being diagnosed with CRPS, Complex Regional Pain Syndrome. Or RSD, Reflex Sympathetic Dystrophy, as it used to be known. Whatever the name, it’s a horrible disease. Not well understood even within the Read More …
A few months ago a part of my world collapsed, although I didn’t realize it at the time. I was diagnosed with mild cognitive impairment, or MCI, as a result of a rare autoimmune and neuro-inflammatory disease. I’ve had the disease since mid-2016, so had Read More …
I just left my family physician’s office, a-g-a-i-n. Don’t get me wrong; he’s a really nice guy, a genuinely kind person! But I really wish I didn’t have to see him every few weeks. It feels as though I’m wasting his time, asking him to Read More …
Regular readers will know that I’m generally optimistic, happy even, despite the rare autoimmune and neuro-inflammatory disease with which I’ve been struggling for the past few years. My focus tends to be on what I can do, more than on what I can’t; not just Read More …
It feels as though I’ve been hiding under a rock for the past little while, even on my regular social media haunts (Twitter and Instagram). That’s because I’ve been dreading a specific medical appointment. It was with the specialist physician who’s treating my neuro-inflammatory and Read More …
