This year, because of the COVID-19 pandemic, there were fewer trick-or-treaters than usual in my area at Halloween. Although I’d expected that there might be less activity than in previous years, I hadn’t wanted to run out of candies and disappoint any kids. We normally Read More …
This year, to mark CRPS Awareness Month and to raise awareness of this rare disease, I created a set of very colourful and eye-catching images to share across social media. Although each message would be different, I wanted the colours and style of the image Read More …
Yesterday was “CRPS Orange Day”, to raise awareness of Complex Regional Pain Syndrome. Why is it called “Orange Day”? That’s a great question! One of the most common symptoms of this rare medical condition is a sensation of burning pain. Neuropathic – nerve – pain, Read More …
When you think about rare diseases, is it usually those affecting children that first come to mind? Genetic diseases like Duchenne Muscular Dystrophy (DMD) or Phenylketonuria (PKU), pediatric cancers like Diffuse Intrinsic Pontine Gliomas (DIPG); there are far too many rare pediatric disorders: About 80% Read More …
