After being diagnosed with Complex Regional Pain Syndrome (CRPS) back in 2016, I relied on my healthcare and clinical (medical) research knowledge to learn as much as I could about this condition. One of the very first things I learned was that CRPS is a Read More …
It’s that time of year again, now that Halloween is over. Today is CRPS Awareness Day, also called CRPS Orange Day or Orange Day for CRPS, because the colour of this rare disease is… orange. Why orange? Because one of the most common symptoms of Read More …
Happy almost Halloween, everyone! I’ve been busy over the past few weeks, participating in meetings about pain research and health policy, providing a patient perspective on the development of a new pain research project, and preparing my own little awareness campaigns for some special events Read More …
Last month I wrote about having done something completely new for me, at a local hospital. It wasn’t a new treatment for my chronic pain condition, or a new project as a Patient Partner in research. So it must have been something to do with Read More …
Today I did something different, something completely new for me, at a local hospital. If it was “different”, then it obviously wasn’t another medical appointment or test for my rare disease! Nor did I attend a research meeting, as either a Patient Partner or a Read More …
While prescription painkillers once drove the nation’s overdose epidemic, they were supplanted first by heroin and then by fentanyl, a dangerously powerful opioid, in recent years.” (1) Unfortunately, though, when people hear about the “opioid epidemic” (2) – in the news, in politics, in public Read More …
