Have you ever had a bad dream, where you found yourself – somehow – in a place or situation in which you’d never wanted to be? That’s what I’m waking up from, only it’s not a dream. As of midnight, an hour ago now, I’m Read More …

Last week I told you why I was so happy to find my brand-new ‘zebra hoofs’ (i.e. boots) at a shoe store’s holiday sale – and the story of how the zebra became a symbol for rare diseases. Wearing zebra print items is one of Read More …

Have you ever read something and found yourself wanting to stand up and scream: “Yes, yes, yes!”? That’s how I felt, earlier today, after reading this line in a news report: “Attending events such as family reunions, holiday parties, weddings or concerts comes at the Read More …

You’ll often see a zebra, or a zebra-striped design, featured when rare diseases are mentioned. That’s because of an old axiom, or saying, in medicine: When you hear hoofbeats, look for horses – not zebras.” A medical axiom This saying is meant to teach medical Read More …

There has been a huge flurry of social media activity over on Twitter and Instagram so far today, for an awareness day, week, and month – and it’s only lunchtime! All this activity is for: CRPS Awareness Day #crpsOrangeDay (1) The first day of Canada’s Read More …

Why do I spend so much of my free time raising awareness of CRPS? Of Complex Regional Pain Syndrome, formerly called Reflex Sympathetic Dystrophy (RSD)? Whether by blogging, creating poster-style images, presenting/speaking, or other means? Why is it important for me to increase awareness of this Read More …