Every now and then I remember how it felt to be me, back before I broke my arm in March 2016. Such a simple little fracture, really. I didn’t even need surgery, and the bone healed up nicely. Unfortunately, that snapped radius triggered a rare Read More …
Last week I was a Patient Partner at the three-day 2018 conference (annual scientific meeting) of the Canadian Pain Society (CPS). On Twitter and Instagram, it was #CanadianPain18. I was also part of the conference’s official Twitter team, live-tweeting the event from a patient perspective. My rare disease is Complex Regional Read More …
I’d been looking forward to today, for almost a month. May 29th. The day I was going to have a new treatment at the hospital, for the rare neuro-inflammatory disease with which I’ve been struggling for over 2 years now. Complex Regional Pain Syndrome, often still called Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
My little cycling buddy, Max, has been helping me raise awareness of a relatively rare neuro-inflammatory disease. It’s called Complex Regional Pain Syndrome, or CRPS for short. Its former name is still often used, too; Reflex Sympathetic Dystrophy, or RSD. Very few people, other than Read More …
Today is a loved one’s milestone birthday. She has dedicated much of her life to helping others, and continues to do so. She teaches leadership skills to youths aged 12-19, and volunteered for years at a primary school library, to keep it from closing. She’s also Read More …
