Earlier today I had a follow-up appointment with my treating physician, at the university-hospital pain management unit (PMU) at which I receive treatment for CRPS. Complex Regional Pain Syndrome is an autoimmune and neuro-inflammatory disease, which carries a long and diverse list of symptoms. Any Read More …
Last month I had my first-ever infusion, as a treatment for my rare disease; Complex Regional Pain Syndrome (CRPS). The full-body infusion of an anesthetic medication was done within the pain management unit of a university hospital, so it was very well-controlled; this isn’t something Read More …
Every now and then I remember how it felt to be me, back before I broke my arm in March 2016. Such a simple little fracture, really. I didn’t even need surgery, and the bone healed up nicely. Unfortunately, that snapped radius triggered a rare Read More …
Last week I was a Patient Partner at the three-day 2018 conference (annual scientific meeting) of the Canadian Pain Society (CPS). On Twitter and Instagram, it was #CanadianPain18. I was also part of the conference’s official Twitter team, live-tweeting the event from a patient perspective. My rare disease is Complex Regional Read More …
I’d been looking forward to today, for almost a month. May 29th. The day I was going to have a new treatment at the hospital, for the rare neuro-inflammatory disease with which I’ve been struggling for over 2 years now. Complex Regional Pain Syndrome, often still called Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
