A few weeks after my diagnosis, what I remember really wanting (other than for the disease to just disappear, all by itself!!!) was to find other people living with the same problems; to feel less alone in the daily struggle with pain and physical limitations. Read More …

Today’s the 3rd annual Color the World Orange Day – to raise awareness for a rare & (usually) invisible disease. This disease is called Complex Regional Pain Syndrome (CRPS). To make things a bit more difficult for this rare disease, the few physicians who know about it Read More …

Today’s the day I’ve been waiting for, since August! I have a rare disease called Complex Regional Pain Syndrome (CRPS), sometimes still referred to by its old name; Reflex Sympathetic Dystrophy (RSD). CRPS can cause a wide range of symptoms, making it difficult to treat. This disease Read More …

This is the final post, in a series of three, about how I’ve chosen to prepare for a potential meeting with a new specialist. I’m waiting to find out whether I’ll be accepted as a patient a university-hospital Pain Management Unit (PMU). I’m quite worried Read More …

This is a continuation of yesterday’s post, about how I chose to prepare for a potential meeting with a new specialist at a Pain Management Unit (PMU). It’s not certain that I’ll be accepted as a patient there, which is worrying me. Preparing for an Read More …

I took a “Duck, duck, goose” approach to the title of today’s post; it seemed like a good idea to add some humour, something a bit lighthearted. That’s because I’ve been getting progressively more anxious, more nervous, about an appointment later this month. It’s at the Pain Management Read More …