Disbelief. Doubtfulness. Incredulity. Skepticism. Sometimes even suspicion. These words describe the reactions – that I’ve felt, heard, seen, and sensed – to parts of my CRPS patient journey. Not from my family or friends, or even from acquaintances or colleagues who know me fairly well. Read More …
A few weeks after my diagnosis, what I remember really wanting (other than for the disease to just disappear, all by itself!!!) was to find other people living with the same problems; to feel less alone in the daily struggle with pain and physical limitations. Read More …
Today’s the 3rd annual Color the World Orange Day – to raise awareness for a rare & (usually) invisible disease. This disease is called Complex Regional Pain Syndrome (CRPS). To make things a bit more difficult for this rare disease, the few physicians who know about it Read More …
Today’s the day I’ve been waiting for, since August! I have a rare disease called Complex Regional Pain Syndrome (CRPS), sometimes still referred to by its old name; Reflex Sympathetic Dystrophy (RSD). CRPS can cause a wide range of symptoms, making it difficult to treat. This disease Read More …
This is the final post, in a series of three, about how I’ve chosen to prepare for a potential meeting with a new specialist. I’m waiting to find out whether I’ll be accepted as a patient a university-hospital Pain Management Unit (PMU). I’m quite worried Read More …
This is a continuation of yesterday’s post, about how I chose to prepare for a potential meeting with a new specialist at a Pain Management Unit (PMU). It’s not certain that I’ll be accepted as a patient there, which is worrying me. Preparing for an Read More …
