I’d been looking forward to today, for almost a month. May 29th. The day I was going to have a new treatment at the hospital, for the rare neuro-inflammatory disease with which I’ve been struggling for over 2 years now. Complex Regional Pain Syndrome, often still called Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
My little cycling buddy, Max, has been helping me raise awareness of a relatively rare neuro-inflammatory disease. It’s called Complex Regional Pain Syndrome, or CRPS for short. Its former name is still often used, too; Reflex Sympathetic Dystrophy, or RSD. Very few people, other than Read More …
Today is a loved one’s milestone birthday. She has dedicated much of her life to helping others, and continues to do so. She teaches leadership skills to youths aged 12-19, and volunteered for years at a primary school library, to keep it from closing. She’s also Read More …
It’s finished. Finally. My first attempt at sewing, with CRPS, didn’t go quite as well as I’d hoped. Don’t get me wrong, the skirt came out really well – and I love the end result! And I’m very proud of how well the zipper turned out Read More …
Founded in 2008, international Rare Disease Day(1) is celebrating its 10th anniversary this year, on February 28th. What is Rare Disease Day? I’m so glad you asked! It’s a day on which healthcare professionals and volunteers, medical students, trainees, patients and caregivers, researchers, and the general public are Read More …
