For so many years, I took so much for granted. Most of us do. For me, it was being able to cross-country ski, hand-write a thank you card, lace up my skates, make and decorate fancy layer-cakes and cupcakes, ride a road (racing-style) bike, sew Read More …
A couple of weeks ago, I wrote about a poster I’d seen at the hospital where I’m a rare disease patient. It was for a community art exhibition, to be held right there in the hospital. It’s the second year of “Journeys Through Health: An Read More …
This post isn’t about therapy, it’s about art-as-outreach at a local university’s multi-hospital health centre. Last Thursday was another ‘patient day’ for me; after getting some work done at my office, from 0700 to 0930, I headed over to the hospital. My destination was the multi-disciplinary Read More …
Earlier today I had a follow-up appointment with my treating physician, at the university-hospital pain management unit (PMU) at which I receive treatment for CRPS. Complex Regional Pain Syndrome is an autoimmune and neuro-inflammatory disease, which carries a long and diverse list of symptoms. Any Read More …
Last month I had my first-ever infusion, as a treatment for my rare disease; Complex Regional Pain Syndrome (CRPS). The full-body infusion of an anesthetic medication was done within the pain management unit of a university hospital, so it was very well-controlled; this isn’t something Read More …
Every now and then I remember how it felt to be me, back before I broke my arm in March 2016. Such a simple little fracture, really. I didn’t even need surgery, and the bone healed up nicely. Unfortunately, that snapped radius triggered a rare Read More …
