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Home >2017 >January

Month: January 2017

some examples of pain sensations, including burning, stabbing, persistent

Pain as layers 30.01.17

Posted on30.01.201724.10.2019

Something I’ve noticed, across a few hospitals and specialized clinics, is that the tools used to rate pain often aren’t adequate. Not for my specific disease, at any rate. Let’s start with a quick rundown of some of the signs and symptoms of Complex Regional Read More …

CategoriesCRPSTagsChronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a woman's hand hooked up to a transcutaneous electrical nerve stimulation (TENS) unit

Pain-o-meter 20.01.17

Posted on20.01.201724.10.2019

Some of the many issues faced by chronic pain patients stem from the subjective nature of pain. It’s usually invisible, often misunderstood, and can be very difficult to explain. One of the hardest things about chronic pain is that only you know how bad the Read More …

CategoriesBioethics, CRPSTagsBioethics, Chronic Pain, CRPS, Rare Disease

a poster of a broken arm, stating "From a fracture to neuroinflammatory disease = CRPS"

Knowledge transfer 15.01.17

Posted on15.01.201724.10.2019

While trying to come to terms with the simple fact of having a rare neuro-inflammatory disease, I’ve been doing what I always do. Trying to understand as much about it as I can. How do I do that? By reading. I’m lucky to have access Read More …

CategoriesBioethics, CRPSTagsBioethics, Chronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a woman snowshoeing up a steep mountain trail

Pain paradigm 11.01.2017

Posted on11.01.201724.10.2019

Have you ever found yourself nodding along, even saying “Yes!” out loud, while reading something? That was me yesterday, reading an article in The Independent; a newspaper published in the United Kingdom. The author was reporting on pain, after his wife had suffered a bout Read More …

CategoriesCRPSTagsChronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

a hospital hallway

Thankful 02.01.2017

Posted on02.01.201719.11.2019

To start the New Year yesterday, I thought back to all the good things that took place in 2016. This has been a habit of mine throughout all of my adult life. On New Year’s Day, rather than being sad that the winter holiday period Read More …

CategoriesBioethics, CRPSTagsChronic Pain, Complex Regional Pain Syndrome, CRPS, Rare Disease, Reflex Sympathetic Dystrophy, RSD

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