Long before being diagnosed with CRPS, in my right hand and arm, I was very familiar with the experience of being a patient. As a child competing in multiple sports, I’d had my fair share of injuries and emergency hospital visits. Sprains and fractures were Read More …
Are there any activities that you loved to do as a child, and have continued to do well into adulthood? Activities that define you, even if only to yourself? That’s what outdoor sports are to me. They’re not something I do, they’re who I am. Read More …
Something I’ve noticed, across a few hospitals and specialized clinics, is that the tools used to rate pain often aren’t adequate. Not for my specific disease, at any rate. Let’s start with a quick rundown of some of the signs and symptoms of Complex Regional Read More …
Some of the many issues faced by chronic pain patients stem from the subjective nature of pain. It’s usually invisible, often misunderstood, and can be very difficult to explain. One of the hardest things about chronic pain is that only you know how bad the Read More …
While trying to come to terms with the simple fact of having a rare neuro-inflammatory disease, I’ve been doing what I always do. Trying to understand as much about it as I can. How do I do that? By reading. I’m lucky to have access Read More …
Have you ever found yourself nodding along, even saying “Yes!” out loud, while reading something? That was me yesterday, reading an article in The Independent; a newspaper published in the United Kingdom. The author was reporting on pain, after his wife had suffered a bout Read More …
