Last week I was a Patient Partner at the three-day 2018 conference (annual scientific meeting) of the Canadian Pain Society (CPS). On Twitter and Instagram, it was #CanadianPain18. I was also part of the conference’s official Twitter team, live-tweeting the event from a patient perspective. My rare disease is Complex Regional Read More …
When I first thought about attending the Canadian Pain Society (CPS) conference – or scientific meeting – all those months ago, I wasn’t certain what to expect. I’ve been going to healthcare conferences and meetings for years, but as someone working in biomedical ethics (bioethics). Read More …
Founded in 2008, international Rare Disease Day(1) is celebrating its 10th anniversary this year, on February 28th. What is Rare Disease Day? I’m so glad you asked! It’s a day on which healthcare professionals and volunteers, medical students, trainees, patients and caregivers, researchers, and the general public are Read More …
It will be Rare Disease Day (1) in just over a week, on February 28th. This is important to me, because in early 2016 I was struck with a rare disease. And then misdiagnosed, over a period of almost three months. That doesn’t seem like Read More …
Last month I posted a word ladder puzzle that I’d created, in case you were looking for something different to do over the winter holidays. If you haven’t taken a stab at my puzzle yet, click here to try it before you view the solution Read More …
You might recall that I submitted a hospital Service Quality and Complaints Commission Dissatisfaction Form back in August. That means, in everyday language, that I filed a complaint. For the backstory, to read about the reasons for which I felt compelled to submit a complaint for how Read More …
