Someone asked me recently to give them some examples of what I mean by mild cognitive impairment, when I say that I’m “losing” my words. This has been the most recent symptom of a rare autoimmune and neuro-inflammatory disease, called Complex Regional Pain Syndrome (CRPS). Read More …
Happy April Fool’s Day! Instead of pulling a practical joke on you today, I have a fun challenge lined up; some CRPS-related word puzzles ‘-) Although it does seem kind of funny to use the word fun in the same sentence as CRPS, or Complex Read More …
This afternoon I had the chance to meet with a group of bright young medical students, from McGill University. To talk with them, and – more importantly! – to answer their questions. About my patient journey. From biomedical ethics (bioethics) professional, to being a patient living Read More …
I was back at the hospital again today, for a rare neuro-inflammatory and autoimmune disease. For the second time this week. And, perhaps oddly, I felt that I was very lucky to be there – so often. Because it means that my medical teams haven’t Read More …
Right before the holidays, my doctors put me on medical leave for a few months. I’m still trying to come to terms with being away from my team at work, and from a job I love – and hoping that this is just a temporary Read More …
Back in October, I experienced something of a role reversal. After years of working in bioethics and managing a Research Ethics Board (REB), I was asked to consider participating in a clinical trial – as a patient. As a research participant. If you’re in the US, Read More …
