It feels as though I’ve been hiding under a rock for the past little while, even on my regular social media haunts (Twitter and Instagram). That’s because I’ve been dreading a specific medical appointment. It was with the specialist physician who’s treating my neuro-inflammatory and Read More …
There are two different stories that I’d really like to write about tonight, but it’s late. I just got back from an appointment with my family physician. One of the stories I want to tell is something that made me very happy, and the other Read More …
Someone asked me recently to give them some examples of what I mean by mild cognitive impairment, when I say that I’m “losing” my words. This has been the most recent symptom of a rare autoimmune and neuro-inflammatory disease, called Complex Regional Pain Syndrome (CRPS). Read More …
Happy April Fool’s Day! Instead of pulling a practical joke on you today, I have a fun challenge lined up; some CRPS-related word puzzles ‘-) Although it does seem kind of funny to use the word fun in the same sentence as CRPS, or Complex Read More …
This afternoon I had the chance to meet with a group of bright young medical students, from McGill University. To talk with them, and – more importantly! – to answer their questions. About my patient journey. From biomedical ethics (bioethics) professional, to being a patient living Read More …
I was back at the hospital again today, for a rare neuro-inflammatory and autoimmune disease. For the second time this week. And, perhaps oddly, I felt that I was very lucky to be there – so often. Because it means that my medical teams haven’t Read More …
